Québec Coalition of Orphan Diseases

Record #: QBC3346
Last Full Update: 23 Feb 2024

Organization Information

Alternate name Information and support centre for rare diseases ; iRARE Centre ; QCOD ; Regroupement québécois des maladies orphelines ; RQMO

Description and Services

Description Rare Disease Information and Resource Centre 
 
* Information and support on any rare disease for patients, caregivers and healthcare providers 
* Basic genetic counseling 
* Resource directory http://rqmo.org/wp/repertoires/ 
* Directory of Quebec and Canadian associations or support groups for rare diseases http://rqmo.org/wp/associations-et-groupes-de-soutien/ 
* Matching service 
* Creation of rare communities for people with rare diseases without an association 
* Promotion of research into rare diseases

Address, Telephone, E-mail, Website, Location

Mailing address 145 rue Sénécal 
Repentigny, QC J5Y 1R9
Office phone 819-943-2854
Toll free phone 1-888-822-2854
E-mail info@rqmo.org
Social Media Facebook: www.facebook.com/RQMOrphelines 
Instagram: https://www.instagram.com/maladiesorphelines/ 
LinkedIn: https://www.linkedin.com/company/rqmo 
Twitter: twitter.com/search?q=RQMOrphelines 
YouTube: www.youtube.com/user/RQMOMalOrph/videos
Website www.rqmo.org

Contact Information

Primary executive Jonathan Pratt, General manager; Email: administration@rqmo.org

Additional Information

Heading Web Health
Accessibility Not applicable
Languages French ; English
Areas served Québec (Province)
Fees Free - Information and support
Hours Mon-Fri 9 am-5 pm

Subjects

Categories Directory/Resource List Publication ~ Orphan Diseases ; Disease/Disability Information ~ Orphan Diseases ; Medical Information Services ~ Orphan Diseases