Québec Coalition of Orphan Diseases
Record #:
QBC3346
Last Modified:
23 Feb 2024
Last Full Update:
23 Feb 2024
Organization Information
| Alternate name | Information and support centre for rare diseases ; iRARE Centre ; QCOD ; Regroupement québécois des maladies orphelines ; RQMO |
Description and Services
| Description | Rare Disease Information and Resource Centre * Information and support on any rare disease for patients, caregivers and healthcare providers * Basic genetic counseling * Resource directory http://rqmo.org/wp/repertoires/ * Directory of Quebec and Canadian associations or support groups for rare diseases http://rqmo.org/wp/associations-et-groupes-de-soutien/ * Matching service * Creation of rare communities for people with rare diseases without an association * Promotion of research into rare diseases |
Address, Telephone, E-mail, Website, Location
| Mailing address | 145 rue Sénécal Repentigny, QC J5Y 1R9 |
| Office phone | 819-943-2854 |
| Toll free phone | 1-888-822-2854 |
| info@rqmo.org | |
| Social Media | Facebook: www.facebook.com/RQMOrphelines Instagram: https://www.instagram.com/maladiesorphelines/ LinkedIn: https://www.linkedin.com/company/rqmo Twitter: twitter.com/search?q=RQMOrphelines YouTube: www.youtube.com/user/RQMOMalOrph/videos |
| Website | www.rqmo.org |
Contact Information
| Primary executive | Jonathan Pratt, General manager; Email: administration@rqmo.org |
Additional Information
| Accessibility | Not applicable |
| Languages | French ; English |
| Areas served | Québec (Province) |
| Fees | Free - Information and support |
| Hours | Mon-Fri 9 am-5 pm |
Subjects
| Categories | Directory/Resource List Publication ~ Orphan Diseases ; Disease/Disability Information ~ Orphan Diseases ; Medical Information Services ~ Orphan Diseases |
| Heading Web | Health |